Patients Living with Adrenal Insufficiency

Data highlights from AltaVoice Patient Insights Network

Who Are We?

Who Are We?

Patients: 441 Ages: <1-80

Male
17% Male
Female
80% Female

Impact On Our Lives

iImpact On Our Lives

Frequent Doctor Visits

62% 2 - 6 times a year
12% 7 - 11 times a year

Major Episodes of Care

been to the ER
51% been to the ER
been admitted to hospital
42% been admitted to hospital
had surgery
8% had surgery

A Combination of Treatments

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Prescription medication 63% Over-the-counter supplements, vitamins, herbs, remedies 19% Special diet/nutrition 11%

Getting Diagnosed

Getting Diagnosed

Initial Symptoms

Initial Symptoms
  • Fatigue
  • Change in activity levels
  • Weakness

Average Age at Diagnosis

Average Age at Diagnosis
32 Year(s) Old
<1 70
Youngest AGE RANGE Oldest

Extensive
Testing

  • Blood testsBlood tests
  • MRIMRI
  • Physical examinationPhysical examination
  • Medical historyMedical history
  • CT scanCT scan

Different Types of Tests

Different Types of Tests
21

Diagnosing Specialty

  • Endocrinology
  • Family Medicine
  • General Practitioner/General Internal Medicine

Patients everywhere are eager to help find better treatments

Better Treatments

85% want to be contacted about trials

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